As a person with severe cerebral palsy, I understand firsthand the importance of inclusion and accessibility. It is essential for individuals with disabilities to have equal opportunities to participate in all aspects of life. Inclusion is not just about physical access, but it also means creating an environment where individuals with disabilities can interact with others and feel included. When we are included, we can better participate in society, develop meaningful relationships, and achieve our full potential.

Accessibility is another critical aspect of inclusion. It is important to ensure that public spaces, transportation, and buildings are accessible to people with disabilities. In my case, I depend on my power chair to move around, so it is essential to have accessible pathways and ramps. Without access, people with disabilities may be isolated, unable to attend events, or participate in everyday activities. By ensuring accessibility, we can create a world that is more inclusive and welcoming to everyone.

Inclusion and accessibility are essential for people with cerebral palsy, but they also benefit society as a whole. When we include people with disabilities, we open ourselves up to new perspectives and experiences. We also promote empathy, understanding, and diversity. By making our communities more accessible, we create a world that is more equitable, inclusive, and just for all. As someone who depends on accessibility and inclusion to participate in everyday life, I can say without a doubt that these values are critical for building a better world for everyone.

Challenge: Watch out for things that may isolate people with disabilities from participating.

Cerebral palsy is a neurological disorder that affects muscle coordination and movement. It is caused by brain damage that occurs during or before birth, and can also develop during the first few years of a child’s life. In my case, my heart stopped beating before I was born, which caused a lack of oxygen to my brain and resulted in my severe cerebral palsy.

The symptoms and signs of cerebral palsy can vary from person to person, depending on the severity of the condition. Common symptoms include poor muscle coordination, difficulty with balance and movement, muscle stiffness, weak muscles, and tremors or involuntary movements. These symptoms can affect various parts of the body, including the arms, legs, and torso, and can make it difficult to perform everyday tasks such as walking, sitting, and standing. Imagine someone else controlling both of your arms and legs.

Other symptoms of cerebral palsy may include difficulty with speech and communication, cognitive impairments, and seizures. These symptoms can have a significant impact on a person’s daily life, and can make it challenging to interact with others and participate in activities.

Challenge: Lay or sit down and let someone control your arms by using stings.

Life hacks and assistive technology can be a game-changer for people with cerebral palsy who use power wheelchairs like me. Having the right tools and strategies can make everyday life easier and more manageable. Here are some life hacks and assistive technology tips that have helped me:

Customized Wheelchair Controls: Customized controls for my power wheelchair have been a huge help for me. I have difficulty using my hands, so I use a big handle to control my chair. I also have a button on the side that allows me to turn off and on my chair. These customizations make it easier for me to control my chair and navigate the world around me.

Communication Devices: Communication devices like my Accent 1400 have been a lifesaver. I use my eyes to control the device and communicate with others. It is frustrating not being able to speak or communicate easily, but having a communication device makes it much easier for me to express myself and participate in conversations.

Voice-Activated Home Devices: Voice-activated home devices like Amazon Echo or Google Home can be great for people with limited mobility like me. I could control the lights, TV, and other devices in my home with just my voice, which makes me feel more independent.

In conclusion, there are many life hacks and assistive technology tools available that can make life easier for people with cerebral palsy who use power wheelchairs. These tools can improve independence, communication, and overall quality of life. 

Challenge: Have someone to push you around in an office chair.

 Here are just a few of the most common challenges that people with cerebral palsy face in their daily lives:

Mobility: Many people with cerebral palsy have difficulty walking, and may require mobility aids such as walkers, crutches, or wheelchairs to get around. Even with these aids, getting around can be challenging, especially in places with stairs or uneven surfaces.

Communication: For those of us who can’t speak, communicating with others can be a constant struggle. I personally use eyegaze technology on an Accent1400 to communicate, which can be a slow and frustrating process at times.

Daily tasks: Simple tasks that most people take for granted, such as getting dressed or feeding oneself, can be much more difficult for someone with cerebral palsy. Assistance from family members, caregivers, or specialized equipment may be necessary.

These are just a few examples of the challenges that people with cerebral palsy face in their daily lives. Despite these challenges, we are a resilient and determined community, and we are constantly finding ways to adapt and overcome.

Challenge: Try communicating  only with your phone for a half hour or letting someone put on your coat.